Great news all around, but let's start with the best news first! So I have been on the phone the past week with Cathy Parker from the GI clinic. She was the liaison between ourselves and Dr. Zlotkin (who is now a VP or something, not seeing patients)So anyways, she called me back last week and said she got a note from general surgery asking about Briar having an upper GI/swallow study (BLECH). Briar had one a week of two after birth to try to figure out why she was regurgitating so much. Cathy said that General Surg wanted to do another one to access her fundoplication. Basically, I let Cathy know that I strongly disagreed, and the best part was she also disagreed. She said as far as she was concerned, Briar needed to have the GJ tube ASAP! I was feeling a little down but not defeated (NEVER!) So I basically said we would come in no problem to have a swallow study, but it needed to be sooner than later.
Cathy left a message tonight on the phone saying that she spoke with Dr. Zlotkon, and they were both in agreeance that a swallow study isn't necessary ***Briar is throwing up a I type this*** I was hooting and howling when I listened to the message, I just kept going "YES!!!" Charles was looking at my funny, saying "WHAT?!?!?" HAHAHA I was so excited. So the plan is for Cathy to send the forms over to surgery, and we wait for a call. They need to access her first but we are one step closer to getting our little dolly at a healthy weight, stopping the regurgitation and hopefully helping her body get the energy it needs!!!!!!! :):):):):):):):):):):):):):):):):)
We also had Briar's 6 month review at Five Counties, it went well. We made plans to set up some recreation (swimming and a music program.) We are now focusing on communication, physiotherapy and visual stimulation. I love all the people involved in her life, but her physiotherapist Sue, holds a special place in my heart. She is just the most calm, funny, positive thinking person I have ever met. We love her.
Well I think that is all for now, I try to throw out the bad stuff and only take in the good stuff. I want to say Congrats to all the new mothers and all the old ones too :) Casey and Ashley, your time is coming very soon, I am so happy for both of you. Congrats to Melissa and Don on this fine October day. Charles and I just celebrated out 5 wedding anniversary the way we saw fit (dinner and ice cream with the kiddies, watching TV and then early to bed HAHAHA) We may be "comfortable" but we love our lives and value each and every person in them.
MAMA POWERS
Hi, my name is Ashley. I am the mother of two children; Ella age 5 and Briar age 2, Briar has 1P36.
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