summer girl 2010

summer girl 2010

Friday, October 15, 2010

Merry Christmas!




Okay, so many good things to report, it feels unreal to have this much good news.
First of all, Briar has been working so hard on holding her head up. I posted a video on FB and will post it here of her on the wingbo swing (we are thinking of purchasing for Christmas family, if anyone is interested in going in on it!!) We are so proud of you Miss B!! Also she has started to roll from her back to one side, thinking she is going to make it all the way over very soon, but since she can't hold her head up, I can't see her being very happy on her tummy hehehe. Briar has finally found her hands. She can't keep them apart, they are attached at all times now :) Ans the best news of all! We met with a dietitian, a nurse practitioner and Dr. Kanani, a pediatrician at Sick Kids GI Clinic today. After asking all the history, talking about her calorie intake and swallow study, they decided she is a great candidate for a GJ Tube!!!! We are soooo happy!!! At first I thought they weren't going to recommend it because they were coming up with all these ideas to supplement her diet. When they asked what "I" wanted, it was my breaking point and I started to cry. I told them we were really hoping to get the tube because I was struggling with all the regurge. I often cry, as you probably know when driving with Briar in the van because I can't help her when she vomits. So after my melt down, they were very kind and compassionate. They said that of course we can go ahead with the tube placement but they had other ideas to try, like new meds and a swallow study (which I thought we had had, but nope) while waiting for a surgery date. So that is that, a mother and her child celebrating another surgery (not an unnecessary one like circumcision, hehehehe)

I think I will have some wine, get a good sleep and think about all the amazing pictures I am going to take of Valerie Running (Minnie) at her wedding tomorrow :)
Much love peeps, Ashley

PS CONGRATS CASEY MAMA!! I DON'T KNOW WHAT GENDER YOU HAD BUT WE ARE ALL THINKING OF YOU!!!!!!!!!!!!!!!!

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